Why we Need the 'Gulf War Review'
As a part of Operation Forgotten Warrior we are asking that the Department of Veterans Affairs once again send out the Gulf War Review that the Forgotten Warrior II have been asking for this.
While the VA did send out the GW review, they did a poor job at putting it together. The VA left out the signs ands symptoms of the presumptive along with many of the other importent issue veterans have been asking for.
The Gulf War review should cover topics relating to gulf war veterans and their health issues that are caused by their exposure in the war as outline in U.S.C. Title 38 Sections 1117 & 1118.
The staff personnel at the VA Central office, along with the doctors and researchers, all should remember that many of theForgotten Warrior II who are ill form their service do have some cognitive dysfunction skills. Thus it is imperative that in writing the ‘Gulf War Review’ that the VA must not use the scientific terminologies without explaining them in layman terms too. So please always remember the audience that you are writing for.
The Forgotten Warrior II have always looking for the changes in the regulation, in the ‘Gulf War Review’. This is something that does affect them every time there is a change and they would need to have it explained in plain everyday terms. An example of this is when there was the changed from just having irritable bowel syndrome (IBS) as a presumptive illness to having all functional gastrointestinal disorder (FGID). Many Forgotten Warrior II still think that this also included the illness GERD; but does not. The ‘Gulf War Review’ needs to explain the difference between a structural and functional gastrointestinal disorder as this may help some. The Review should also explain how a doctor can confirm diagnose with a 24-Hour Esophageal pH Test or an endoscope that could also rule out other illness like Barrett's Esophagus or ulcers.
Forgotten Warrior II would like to get into treatment research and researcher are looking for them too. If we know about the research through the Review then we can get involved. The research needs to say in layman terms what they are looking for what it will do and what the requirements are for the Forgotten Warrior II . If a veteran who is suffering from severe traumatic brain injury is not eligible for that treatment protocol it should be listed so that the veteran will know not to apply.
When the studies are over, we would like to know the results too; good, bad or whatever. It is important to us as we do not want to feel we, “just wasted out time”. Many of us understand that in research you do not always get the results you set out to find, that is okay after all that is why it is called research. Just let us know too, it helps in building and keeping the trust.
Forgotten Warrior II want their lives back to help in this, the Review need to keep us informs of new treatments.
One item that to cover and will help many of us gulf war veterans out is the fact that have problems with migraine headaches and we would like to know of the best treatments for our illness. That is of course treatment with the fewer amounts of side effects. We do not want a drug that will cause massive weight gain when some other drug will work just as well without the side effect of weight gain. (Depakote vs. Topiramate) There are other things the Review could have on the subject to help the veteran like lifestyle changes can help prevent some of the symptoms. These can be as easy as avoidance of chocolates can help prevent migraines along with avoidance of aged cheese along with up-to-date research.
As you can see there is a lot of great information that we should be getting but we are not.
The VA keep asking the veterans to sign up for the Gulf War Review but yet they have not given the Gulf War review out to us we are asking all veterans to formulate a letter and send it to the secretary the Department of Veterans Affairs asking them to once again send the Gulf War review with critical information that they feel should be in the Gulf War review
Doctors need to be able to prescribe to us the latest types of treatment when it is proven to work. An example of that is acupuncture is being used in some of the VA's but veterans here in the Midwest don't know about it or how to get acupuncture treatments for their ailments. It would be nice to see that article in the Gulf War review and not just once but maybe two years later. Research that has findings that may help them down the road with placed in the Gulf War review also research that did not pan out. Veterans know they were in a study, or they know a study was doing on and then they hear not one word after it is over. WHY? Even if the study did not come to what a researcher was looking for, it still did find something out, just as someone once said something like "One more way not to make a light bulb".
We are asking that veterans not only to send their letters to the Secretary of the Department of Veterans Affairs, we are asking that your letter are also sent to the Chairperson both of both the House of Veterans Affairs and the Senate Veterans Affairs.